An admission at the Intensive Care Unit (ICU) is a very dramatic event for both the patiënt and their family members, with continuous new information and an ever-changing situation. Processing this period during and after the ISU admission is easier when a diary is kept by the patient and their loved ones. This helps them to process this period more quickly and to gradually return to a life as normal as possible.
“Keeping diaries during the ICU admission really contributed to processing everything. Because my husband wrote down what happened, I was able to read back where those images in my head came from.”
– Daphne Bolman, was at intensive care for two months.
The diary can easily be created by the patient or legal representative, mostly a direct family member. Once logged in, it is also possible to invite others to write and read along. Those are co-readers and co-writers in the diary. Click on the button below to start.
Nurses can also write in the diary. This can help the patient and family members to get a more complete picture of the ICU admission afterwards. This option will be available soon.
The ICU is a department full of events and sounds. This can make it difficult for patients and family members to remember, understand and process all this new information. Moreover, a patiënt infected with the coronavirus is often unconscious. In that case, a family member or legal representative of the patient makes the decisions for the patient. A huge responsibility at a difficult time.
Family, friends and acquaintances are curious how the patient is doing. For this purpose, they contact those involved. A difficult task, especially when it is hard to remember all the events and inform others about this.
As soon as the patient is back home, the processing of the ICU period really begins. Often the patient and family members have a different image of and feeling about this time. Due to memory problems, the patient may have a lot of questions, especially if the patient was unconscious. This can make it difficult for family members to provide the correct information.
It is hard to deal with this dramatic period, especially when memories are missing. This can lead to developing PICS, to both the patiënt and their next of kin. Think of physical, psychological and cognitive problems that may adversely affect quality of life.
Are you interested in introducing the Post-IC diary in your hospital? Send an email to firstname.lastname@example.org.
Are you a journalist or reporter and do you have any questions about the Post-IC diary? Send an email to email@example.com.
Do you have any other questions about the Post-IC diary? Send an email to firstname.lastname@example.org.
Post Intensive Care Syndrome (PICS) consists of complaints that have a major impact on life. To help patients and their family members get more grip on an already difficult period, the Catharina Hospital and Games for Health developed the Post-ICU diary for tomorrow.